Alternating Hemiplegia of Childhood Foundation President Releases Podcast on Rare Disease
Jeff Wuchich Discusses Rare Disease Day, National Push for a Cure
Raleigh, NC, February 04, 2012 --(PR.com)-- The Alternating Hemiplegia of Childhood Foundation (http://www.ahckids.org), a nonprofit organization dedicated to raising awareness of and funds for Alternating Hemiplegia of Childhood (AHC), a rare but debilitating neurological disorder causing temporary bouts of paralysis, has announced that Jeff Wuchich, the organization’s president, has released a podcast on the disease and Rare Disease Day, which is Feb. 29. In the podcast, Wuchich discusses the effects of AHC; how the AHC Foundation is spearheading the push for research through fundraising efforts, including the “1 in a Million” campaign; the significance of Rare Disease Day; and his personal experience with the disease. Jeff’s son Matthew currently suffers from AHC, for which there is no known cure. To listen to the podcast, visit http://bit.ly/zyP5Ol.
Quotes:
“We hope to eventually find a cure for Alternating Hemiplegia of Childhood, but without the proper funding, the research leading to a cure cannot take place,” said Wuchich. “The Alternating Hemiplegia of Childhood Foundation seeks to educate the public about the necessity for helping those who suffer from this disease through our “1 in a Million” campaign. We need 1 million people donating $1 each for a cure. Will you be that one?”
New Media Content:
Alternating Hemiplegia of Childhood Foundation’s YouTube channel:
http://www.youtube.com/user/AHCPresident?feature=mhum
Alternating Hemiplegia of Childhood Foundation’s Twitter feed:
http://twitter.com/#!/ahckids
Alternating Hemiplegia of Childhood Foundation’s Facebook page:
http://www.facebook.com/AHCKids?v=page_getting_started
Details:
- One in every million children suffers from AHC. Since there is no known cure, though, adults are affected as well.
About The Alternating Hemiplegia of Childhood Foundation (AHCF)
The Alternating Hemiplegia of Childhood Foundation is a nonprofit tax exempt 501(c)(3) organization that is a combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. Managed by parents of children with AHC, the AHCF is run almost entirely by volunteers, which allows the patient advocacy group to keep administrative costs to a minimum. The AHCF has a medical advisory board consisting of physicians and other professionals who have experience with alternating hemiplegia of childhood, which is a rare neurological disorder. The organization’s mission is to find the cause(s) of AHC, develop effective treatments, and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Secondarily, the AHCF strives to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. During 2012, the AHCF is looking for 1 million people to donate $1 each in its 1 in a Million Campaign. For more information, visit http://ahckids.org/.
Emily Packard
MMI Public Relations
(919) 233-6600
emily@mmipublicrelations.com
http://twitter.com/MMIPR
http://www.mmipublicrelations.com
###
Quotes:
“We hope to eventually find a cure for Alternating Hemiplegia of Childhood, but without the proper funding, the research leading to a cure cannot take place,” said Wuchich. “The Alternating Hemiplegia of Childhood Foundation seeks to educate the public about the necessity for helping those who suffer from this disease through our “1 in a Million” campaign. We need 1 million people donating $1 each for a cure. Will you be that one?”
New Media Content:
Alternating Hemiplegia of Childhood Foundation’s YouTube channel:
http://www.youtube.com/user/AHCPresident?feature=mhum
Alternating Hemiplegia of Childhood Foundation’s Twitter feed:
http://twitter.com/#!/ahckids
Alternating Hemiplegia of Childhood Foundation’s Facebook page:
http://www.facebook.com/AHCKids?v=page_getting_started
Details:
- One in every million children suffers from AHC. Since there is no known cure, though, adults are affected as well.
About The Alternating Hemiplegia of Childhood Foundation (AHCF)
The Alternating Hemiplegia of Childhood Foundation is a nonprofit tax exempt 501(c)(3) organization that is a combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. Managed by parents of children with AHC, the AHCF is run almost entirely by volunteers, which allows the patient advocacy group to keep administrative costs to a minimum. The AHCF has a medical advisory board consisting of physicians and other professionals who have experience with alternating hemiplegia of childhood, which is a rare neurological disorder. The organization’s mission is to find the cause(s) of AHC, develop effective treatments, and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Secondarily, the AHCF strives to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. During 2012, the AHCF is looking for 1 million people to donate $1 each in its 1 in a Million Campaign. For more information, visit http://ahckids.org/.
Emily Packard
MMI Public Relations
(919) 233-6600
emily@mmipublicrelations.com
http://twitter.com/MMIPR
http://www.mmipublicrelations.com
###
Contact
AHC Foundation
Patty Briguglio
919-233-6600
Patty Briguglio
919-233-6600
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