A Country United: Tourette Syndrome Community Says Yes to Bill H.R. 3760
Introduced in December 2011, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011 would greatly help TS families nationwide if passed.
Somerville, NJ, February 24, 2012 --(PR.com)-- Since it was introduced by U.S. Congressman Albio Sires (D-NJ13) on Dec. 20, 2011, Bill H.R. 3760 — the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011 — has gained a lot of national attention.
It now has 36 co-sponsors, is pending review by a Congressional subcommittee and is being voted on and debated by people from all over the nation on multiple legislative websites, including POPVOX.
On POPVOX, which bridges the gap between the input the public wants to provide and the information members of Congress want and need to receive, H.R. 3760 has garnered overwhelming support — 83 percent of those who have weighed in about it have said, “Yes, we want and need this legislation.”
The New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) wholly supports this bill and wants to let the rest of the public know what people nationally have been saying about the bill and why it is so important, as well as encourage everyone to support it and spread the word.
Following are a few testimonials from the H.R. 3760 page on POPVOX, which can be visited at https://www.popvox.com/bills/us/112/hr3760. More information about the bill and further testimonials can be found by visiting http://www.njcts.org/tsparents.
lafaymom in Pennsylvania’s 10th District says … “I knew throughout my son’s life he was not a normal, healthy child but because of the lack of education of the doctors, teachers, and therapist who were not trained in Tourette’s Syndrome my son did not receive his diagnosis in a timely manner. When he turned 10 years old, his tics, and vocalizations became so severe that our Pediatrician finally gave us the diagnosis of T.S. after consultation with a Neurologist. His childhood was filled with sorrow and confusion; this led to chronic depression along with many other problems associated with T.S. While visiting my Son’s Neurologist, what changed our life was a 3×5 index card with the phone number of our PA-Tourette Syndrome Association. They transformed our family. If nothing is done patients and families will face situations that will scar them for a lifetime if the appropriate intervention is not available. My Son is now 32 and he struggles daily, we spent 10 years trying to get a diagnosis and then had to join a group Law-Suit to get the education he was due. Please we need help, don’t let another child go through this when it can be avoided. We owe it to the community to support this Bill – H.R. 3760.”
Michael Haluski in North Carolina’s 8th District says … “I have personally observed the debilitating effects of Tourettes on my granddaughter. Until you have a little 7 year old sit in your lap, look you in the eye, and tell you she wants to be normal like everyone else you can’t understand. She has started feeling the effects of bullying brought on because she is different. We can make a difference in the lives of children such as my granddaughter. Just so you know, her name is Jordan. She was diagnosed with Tourettes about 4 years back. She does her best to control her Tourettes when in public because she knows she is different. I strongly urge you to support HR 3760.”
Devon Alpert in New Jersey’s 3rd District says … “My son Devon Alpert was diagnosed with Tourette’s 3 years ago when he was 7. His symptoms started with eye blinking and quickly progressed to uncontrollable body movements and vocalizations. The body tics have been not only painful at times for Devon but are also embarrassing to him. Prior to his diagnosis Devon was extremely outgoing and the happiest child you would ever meet. While he has done his best to deal with his disorder, they have had many affects on his life as well as our families. The tics often make it nearly impossible to concentrate in school and have also brought out many anger issues with him. We have done everything we can to help him deal with this and treat him as normally as possible. The harsh reality is that this is a disorder that most people do not understand although it affects many more then I would have ever thought. In order to help Devon and others like him I would ask that you please pass this bill and help the many children throughout our country who have to deal with Tourette’s on a daily basis.”
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It now has 36 co-sponsors, is pending review by a Congressional subcommittee and is being voted on and debated by people from all over the nation on multiple legislative websites, including POPVOX.
On POPVOX, which bridges the gap between the input the public wants to provide and the information members of Congress want and need to receive, H.R. 3760 has garnered overwhelming support — 83 percent of those who have weighed in about it have said, “Yes, we want and need this legislation.”
The New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) wholly supports this bill and wants to let the rest of the public know what people nationally have been saying about the bill and why it is so important, as well as encourage everyone to support it and spread the word.
Following are a few testimonials from the H.R. 3760 page on POPVOX, which can be visited at https://www.popvox.com/bills/us/112/hr3760. More information about the bill and further testimonials can be found by visiting http://www.njcts.org/tsparents.
lafaymom in Pennsylvania’s 10th District says … “I knew throughout my son’s life he was not a normal, healthy child but because of the lack of education of the doctors, teachers, and therapist who were not trained in Tourette’s Syndrome my son did not receive his diagnosis in a timely manner. When he turned 10 years old, his tics, and vocalizations became so severe that our Pediatrician finally gave us the diagnosis of T.S. after consultation with a Neurologist. His childhood was filled with sorrow and confusion; this led to chronic depression along with many other problems associated with T.S. While visiting my Son’s Neurologist, what changed our life was a 3×5 index card with the phone number of our PA-Tourette Syndrome Association. They transformed our family. If nothing is done patients and families will face situations that will scar them for a lifetime if the appropriate intervention is not available. My Son is now 32 and he struggles daily, we spent 10 years trying to get a diagnosis and then had to join a group Law-Suit to get the education he was due. Please we need help, don’t let another child go through this when it can be avoided. We owe it to the community to support this Bill – H.R. 3760.”
Michael Haluski in North Carolina’s 8th District says … “I have personally observed the debilitating effects of Tourettes on my granddaughter. Until you have a little 7 year old sit in your lap, look you in the eye, and tell you she wants to be normal like everyone else you can’t understand. She has started feeling the effects of bullying brought on because she is different. We can make a difference in the lives of children such as my granddaughter. Just so you know, her name is Jordan. She was diagnosed with Tourettes about 4 years back. She does her best to control her Tourettes when in public because she knows she is different. I strongly urge you to support HR 3760.”
Devon Alpert in New Jersey’s 3rd District says … “My son Devon Alpert was diagnosed with Tourette’s 3 years ago when he was 7. His symptoms started with eye blinking and quickly progressed to uncontrollable body movements and vocalizations. The body tics have been not only painful at times for Devon but are also embarrassing to him. Prior to his diagnosis Devon was extremely outgoing and the happiest child you would ever meet. While he has done his best to deal with his disorder, they have had many affects on his life as well as our families. The tics often make it nearly impossible to concentrate in school and have also brought out many anger issues with him. We have done everything we can to help him deal with this and treat him as normally as possible. The harsh reality is that this is a disorder that most people do not understand although it affects many more then I would have ever thought. In order to help Devon and others like him I would ask that you please pass this bill and help the many children throughout our country who have to deal with Tourette’s on a daily basis.”
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Contact
New Jersey Center for Tourette Syndrome
Jeff Weber
908-575-7350
www.njcts.org
Jeff Weber
908-575-7350
www.njcts.org
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