Alternating Hemiplegia of Childhood Foundation Launches 1 in a Million Campaign on Rare Disease Day
Effort to Raise $1 Million for Disease Research in 2012 Kicks Off on Wednesday, Feb. 29
Raleigh, NC, February 25, 2012 --(PR.com)-- The Alternating Hemiplegia of Childhood Foundation (http://www.ahckids.org), a nonprofit organization dedicated to raising awareness of and funds for Alternating Hemiplegia of Childhood (AHC), a rare but debilitating neurological disorder causing temporary bouts of paralysis, has announced that the organization is launching its “1 in a Million” campaign to raise $1 million for AHC research in 2012 on Wednesday, Feb. 29, which is also World Rare Disease Day. The goal of the campaign is to reach 1 million people this year, and have each of them donate $1 or more to the AHC Foundation. Donations will be used to fund research to find the genetic cause(s) of AHC, develop effective treatments and find a cure for the disease.
To find out more about the AHC Foundation and the “1 in a Million” campaign, visit http://www.ach2012.org.
Quotes:
“Recently, the AHC Foundation received a $250,000 grant from the Pepsi Refresh Project to conduct research on the causes of AHC, which inspired us to gear up for an even larger fundraising undertaking in the hopes of finding a cure,” said Jeff Wuchich, president of the AHC Foundation. “My son, Matthew, suffers from the disease, and I want a cure for him and all the other families who are counting on this campaign to witness some incredible advances. Without adequate participation, much-needed research cannot be done. I encourage everyone to educate themselves about AHC and consider donating to our cause. By giving just $1, you could be that one who helps us find a cure.”
New Media Content:
Time Warner Cable public service announcement:
http://www.youtube.com/watch?v=A3nc6Vew8ms
Alternating Hemiplegia of Childhood Foundation’s YouTube channel:
http://www.youtube.com/user/AHCPresident?feature=mhum
Alternating Hemiplegia of Childhood Foundation’s Twitter feed:
http://twitter.com/#!/ahckids
Alternating Hemiplegia of Childhood Foundation’s Facebook page:
http://www.facebook.com/AHCKids?v=page_getting_started
Details:
- One in every 1 million children suffers from AHC. Since there is no known cure, adults are affected as well. There are likely thousands of undiagnosed cases around the world.
- Bouts of paralysis can last from minutes to days at a time. Other effects of AHC include severe learning, behavioral and movement disabilities.
- About 50 percent of people with AHC have epilepsy as well, so discoveries from research may have benefits for the millions more who suffer from epilepsy.
About The Alternating Hemiplegia of Childhood Foundation (AHCF)
The Alternating Hemiplegia of Childhood Foundation is a nonprofit tax exempt 501(c)(3) organization that is a combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. Managed by parents of children with AHC, the AHCF is run almost entirely by volunteers, which allows the patient advocacy group to keep administrative costs to a minimum. The AHCF has a medical advisory board consisting of physicians and other professionals who have experience with alternating hemiplegia of childhood, which is a rare neurological disorder. The organization’s mission is to find the cause(s) of AHC, develop effective treatments, and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Secondarily, the AHCF strives to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. During 2012, the AHCF is looking for 1 million people to donate $1 each in its 1 in a Million Campaign. For more information, visit http://ahckids.org/.
Emily Packard
MMI Public Relations
(919) 233-6600
emily@mmipublicrelations.com
http://twitter.com/MMIPR
http://www.mmipublicrelations.com
###
To find out more about the AHC Foundation and the “1 in a Million” campaign, visit http://www.ach2012.org.
Quotes:
“Recently, the AHC Foundation received a $250,000 grant from the Pepsi Refresh Project to conduct research on the causes of AHC, which inspired us to gear up for an even larger fundraising undertaking in the hopes of finding a cure,” said Jeff Wuchich, president of the AHC Foundation. “My son, Matthew, suffers from the disease, and I want a cure for him and all the other families who are counting on this campaign to witness some incredible advances. Without adequate participation, much-needed research cannot be done. I encourage everyone to educate themselves about AHC and consider donating to our cause. By giving just $1, you could be that one who helps us find a cure.”
New Media Content:
Time Warner Cable public service announcement:
http://www.youtube.com/watch?v=A3nc6Vew8ms
Alternating Hemiplegia of Childhood Foundation’s YouTube channel:
http://www.youtube.com/user/AHCPresident?feature=mhum
Alternating Hemiplegia of Childhood Foundation’s Twitter feed:
http://twitter.com/#!/ahckids
Alternating Hemiplegia of Childhood Foundation’s Facebook page:
http://www.facebook.com/AHCKids?v=page_getting_started
Details:
- One in every 1 million children suffers from AHC. Since there is no known cure, adults are affected as well. There are likely thousands of undiagnosed cases around the world.
- Bouts of paralysis can last from minutes to days at a time. Other effects of AHC include severe learning, behavioral and movement disabilities.
- About 50 percent of people with AHC have epilepsy as well, so discoveries from research may have benefits for the millions more who suffer from epilepsy.
About The Alternating Hemiplegia of Childhood Foundation (AHCF)
The Alternating Hemiplegia of Childhood Foundation is a nonprofit tax exempt 501(c)(3) organization that is a combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. Managed by parents of children with AHC, the AHCF is run almost entirely by volunteers, which allows the patient advocacy group to keep administrative costs to a minimum. The AHCF has a medical advisory board consisting of physicians and other professionals who have experience with alternating hemiplegia of childhood, which is a rare neurological disorder. The organization’s mission is to find the cause(s) of AHC, develop effective treatments, and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Secondarily, the AHCF strives to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. During 2012, the AHCF is looking for 1 million people to donate $1 each in its 1 in a Million Campaign. For more information, visit http://ahckids.org/.
Emily Packard
MMI Public Relations
(919) 233-6600
emily@mmipublicrelations.com
http://twitter.com/MMIPR
http://www.mmipublicrelations.com
###
Contact
AHC Foundation
Patty Briguglio
919-233-6600
Patty Briguglio
919-233-6600
Contact
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