SADS Foundation Launches Ground-Breaking "Q & A" Platform
Salt Lake City, UT, March 08, 2012 --(PR.com)-- The SADS Foundation, in conjunction with the Mayo Clinic, is delighted to announce the launch of the ground-breaking program: “The Heart of the Matter – Ask the Experts."
This innovative program features questions regarding Long QT syndrome and other SADS conditions, with answers from some of the world experts. Physicians, health care providers and affected families can submit their questions here. The top-ranked questions will be answered by a SADS physician expert.
The idea was formed in the “Long QT Kids and Families” Facebook group, formed by Dan Alatorre who is personally affected by Long QT syndrome (a SADS condition).
This pilot video features a question submitted from Spain and is answered by Michael J. Ackerman, MD, PhD, Windland Smith Rice Cardiovascular Genomics Research Professor Professor of Medicine, Pediatrics, and Pharmacology Director, Long QT Syndrome/Genetic Heart Rhythm Clinic Director, Windland Smith Rice Sudden Death Genomics Laboratory Consultant, Cardiovascular Diseases and Pediatric Cardiology President, Sudden Arrhythmia Death Syndromes (SADS) Foundation.
Question: When are they going to know what mutations are dangerous and which ones will never have an event?
For the answer – watch the video.
To submit questions to the SADS Foundation for “The Heart of the Matter – Ask the Experts” section, please visit http://www.sads.org/living-with-sads/Heart-of-the-Matter---Ask-the-Experts.
The warning signs of Long QT or other SADS conditions are:
Family history of unexpected, unexplained sudden death in a young person
Fainting (syncope) or seizure during exercise, excitement or startle
Consistent or unusual chest pain and/or shortness of breath during exercise
If you know someone who has these warning signs, please go to www.StopSADS.org immediately to find a risk-assessment, and follow-up with your cardiologist. SADS conditions are often misdiagnosed as seizure or other neurological disorders.
About the SADS Foundation
Formed in 1992, the SADS (Sudden Arrhythmia Death Syndromes) Foundation’s mission is to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. We are committed to promoting the early detection and treatment of these conditions throughout the world. The Foundation distributes materials internationally through grass roots efforts in order to teach families, educators and medical professionals about SADS conditions.
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SADS (Sudden Arrhythmia Death Syndromes) Foundation
Phone: 1.800.STOP-SAD (800.786.7723) www.StopSADS.org
Facebook: www.causes.com/causes/225843 Follow us Twitter: www.twitter.com/SADSFoundation`
508 E. South Temple, Suite 202, Salt Lake City, Utah 84102
www.StopSADS.org
Phone: (801) 531-0937 or 1-800-STOP-SAD (786-7723)
Contact: Laura Wall
E-mail: laura@sads.org
This innovative program features questions regarding Long QT syndrome and other SADS conditions, with answers from some of the world experts. Physicians, health care providers and affected families can submit their questions here. The top-ranked questions will be answered by a SADS physician expert.
The idea was formed in the “Long QT Kids and Families” Facebook group, formed by Dan Alatorre who is personally affected by Long QT syndrome (a SADS condition).
This pilot video features a question submitted from Spain and is answered by Michael J. Ackerman, MD, PhD, Windland Smith Rice Cardiovascular Genomics Research Professor Professor of Medicine, Pediatrics, and Pharmacology Director, Long QT Syndrome/Genetic Heart Rhythm Clinic Director, Windland Smith Rice Sudden Death Genomics Laboratory Consultant, Cardiovascular Diseases and Pediatric Cardiology President, Sudden Arrhythmia Death Syndromes (SADS) Foundation.
Question: When are they going to know what mutations are dangerous and which ones will never have an event?
For the answer – watch the video.
To submit questions to the SADS Foundation for “The Heart of the Matter – Ask the Experts” section, please visit http://www.sads.org/living-with-sads/Heart-of-the-Matter---Ask-the-Experts.
The warning signs of Long QT or other SADS conditions are:
Family history of unexpected, unexplained sudden death in a young person
Fainting (syncope) or seizure during exercise, excitement or startle
Consistent or unusual chest pain and/or shortness of breath during exercise
If you know someone who has these warning signs, please go to www.StopSADS.org immediately to find a risk-assessment, and follow-up with your cardiologist. SADS conditions are often misdiagnosed as seizure or other neurological disorders.
About the SADS Foundation
Formed in 1992, the SADS (Sudden Arrhythmia Death Syndromes) Foundation’s mission is to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. We are committed to promoting the early detection and treatment of these conditions throughout the world. The Foundation distributes materials internationally through grass roots efforts in order to teach families, educators and medical professionals about SADS conditions.
###
SADS (Sudden Arrhythmia Death Syndromes) Foundation
Phone: 1.800.STOP-SAD (800.786.7723) www.StopSADS.org
Facebook: www.causes.com/causes/225843 Follow us Twitter: www.twitter.com/SADSFoundation`
508 E. South Temple, Suite 202, Salt Lake City, Utah 84102
www.StopSADS.org
Phone: (801) 531-0937 or 1-800-STOP-SAD (786-7723)
Contact: Laura Wall
E-mail: laura@sads.org
Contact
SADS Foundation
Laura Wall, Vice President
801-641-7148
www.StopSADS.org
Laura Wall, Vice President
801-641-7148
www.StopSADS.org
Contact
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