Speaking of NEC Podcast Featuring Expert Parent Laura Martin Launches August 28
Produced by The Morgan Leary Vaughan Fund, and funded by The Petit Family Foundation, Speaking of NEC is a series of one-on-one conversations with relevant Necrotizing Enterocolitis (NEC) experts - neonatologists, clinicians and researchers - that highlights current prevention, diagnosis, and treatment strategies for NEC, and the search for a cure.
Milford, CT, August 26, 2015 --(PR.com)-- Ep. 6: Joseph’s Story — An Expert Parent’s Perspective on Late-onset NEC and Short Bowel Syndrome
Episode 6 features Laura Martin, expert parent, mom blogger at Joseph at Home, and the Director of Parent Communication and Engagement at Graham’s Foundation – a non-profit organization that supports parents of premature infants.
During the episode, Laura shares her son Joseph’s story of prematurity and survival including his near fatal bout of late-onset NEC and the multitude of life-long complications that have resulted. She discusses:
· The extremely premature birth of her twin sons, Joseph and Campbell, at 24 weeks — four months early, and Campbell’s passing at 23 days of life,
· How Joseph developed late-onset NEC and lost two-thirds of his small intestine,
· Several of Joseph’s secondary diagnoses including Short Bowel Syndrome, Auditory Neuropathy Spectrum Disorder, Eosinophilic Esophagitis, and multiple food allergies – all resulting from NEC,
· How hers and her family’s experience with prematurity led to her work at Graham’s Foundation,
· Her personal blog where she documents her daily life as an expert parent of a child with special needs.
Episode 6 launches on Friday, August 28, 2015 at noon EDT, and will be available to listen to, or download, at www.morgansfund.org/speaking-of-nec-episode-6 or on iTunes.
This episode was produced in part by the TeacherCast Educational Broadcasting Network. For more information about Speaking of NEC or The Morgan Leary Vaughan Fund, visit morgansfund.org.
About The Morgan Leary Vaughan Fund, Inc.
The Morgan Leary Vaughan Fund (Morgan’s Fund) is an all-volunteer, public charity dedicated to Necrotizing Enterocolitis (NEC). Its mission is to promote public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advance research to prevent, diagnose, treat, and ultimately, cure NEC. Named after Morgan, it celebrates his survival, courage and strength.
Morgan and his twin brother were born at 28 weeks, one day gestation — nearly three months early — each weighing less than 2.5 pounds. At four days old, Morgan developed NEC and lost approximately 20% of his small intestine. Morgan not only survived but has also thrived since his bout with NEC. This is his family’s way of paying it forward.
About The Petit Family Foundation
The Petit Family Foundation honors the memories of Jennifer Hawke-Petit, Hayley Elizabeth Petit and Michaela Rose Petit by continuing the kindness, idealism and activism that defined their lives. The Foundation’s funds are given to foster the education of young people, especially women in the sciences; to improve the lives of those affected by chronic illnesses; and to support efforts to protect and help those affected by violence.
About Laura Martin
Laura Burgess Martin is a cum laude graduate of Converse College in Spartanburg, SC where she studied both flute and piano and received a Bachelor of Music in Music Education degree. She received her Master of Music in Music Education degree from the University of Georgia. Laura taught middle school in metro Atlanta for five years before staying home with her children.
Laura is the Director of Parent Communication and Engagement at Graham’s Foundation, a non-profit organization that offers practical and emotional support to parents of premature infants. She also serves as the Necrotizing Enterocolitis mentor as a part of the parent mentor program through Graham’s Foundation.
In addition to her blogging at Graham’s Foundation, Laura maintains her personal blog, Joseph at Home. Joseph at Home (http://josephathome.com) chronicles Joseph’s journey as a survivor twin since his birth at 24 weeks gestation. What began as a blog to keep friends and family updated on Joseph’s premature birth is now a blog about her family and their life raising a child with multiple special needs as a result of his premature birth. Laura is also an advocate for children and families raising children with special needs.
In addition to her blogging for Graham’s Foundation and her personal blog, Laura has had several articles published for Preemie Babies 101 and Complex Child e-magazine. In 2014, Laura was named one of Converse College’s 125 Outstanding Alumnae in honor of the college’s 125th anniversary.
Laura is the proud wife of Scott, and mom of two – Joseph and Emily. Laura resides in a suburb of Atlanta, Georgia.
Episode 6 features Laura Martin, expert parent, mom blogger at Joseph at Home, and the Director of Parent Communication and Engagement at Graham’s Foundation – a non-profit organization that supports parents of premature infants.
During the episode, Laura shares her son Joseph’s story of prematurity and survival including his near fatal bout of late-onset NEC and the multitude of life-long complications that have resulted. She discusses:
· The extremely premature birth of her twin sons, Joseph and Campbell, at 24 weeks — four months early, and Campbell’s passing at 23 days of life,
· How Joseph developed late-onset NEC and lost two-thirds of his small intestine,
· Several of Joseph’s secondary diagnoses including Short Bowel Syndrome, Auditory Neuropathy Spectrum Disorder, Eosinophilic Esophagitis, and multiple food allergies – all resulting from NEC,
· How hers and her family’s experience with prematurity led to her work at Graham’s Foundation,
· Her personal blog where she documents her daily life as an expert parent of a child with special needs.
Episode 6 launches on Friday, August 28, 2015 at noon EDT, and will be available to listen to, or download, at www.morgansfund.org/speaking-of-nec-episode-6 or on iTunes.
This episode was produced in part by the TeacherCast Educational Broadcasting Network. For more information about Speaking of NEC or The Morgan Leary Vaughan Fund, visit morgansfund.org.
About The Morgan Leary Vaughan Fund, Inc.
The Morgan Leary Vaughan Fund (Morgan’s Fund) is an all-volunteer, public charity dedicated to Necrotizing Enterocolitis (NEC). Its mission is to promote public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advance research to prevent, diagnose, treat, and ultimately, cure NEC. Named after Morgan, it celebrates his survival, courage and strength.
Morgan and his twin brother were born at 28 weeks, one day gestation — nearly three months early — each weighing less than 2.5 pounds. At four days old, Morgan developed NEC and lost approximately 20% of his small intestine. Morgan not only survived but has also thrived since his bout with NEC. This is his family’s way of paying it forward.
About The Petit Family Foundation
The Petit Family Foundation honors the memories of Jennifer Hawke-Petit, Hayley Elizabeth Petit and Michaela Rose Petit by continuing the kindness, idealism and activism that defined their lives. The Foundation’s funds are given to foster the education of young people, especially women in the sciences; to improve the lives of those affected by chronic illnesses; and to support efforts to protect and help those affected by violence.
About Laura Martin
Laura Burgess Martin is a cum laude graduate of Converse College in Spartanburg, SC where she studied both flute and piano and received a Bachelor of Music in Music Education degree. She received her Master of Music in Music Education degree from the University of Georgia. Laura taught middle school in metro Atlanta for five years before staying home with her children.
Laura is the Director of Parent Communication and Engagement at Graham’s Foundation, a non-profit organization that offers practical and emotional support to parents of premature infants. She also serves as the Necrotizing Enterocolitis mentor as a part of the parent mentor program through Graham’s Foundation.
In addition to her blogging at Graham’s Foundation, Laura maintains her personal blog, Joseph at Home. Joseph at Home (http://josephathome.com) chronicles Joseph’s journey as a survivor twin since his birth at 24 weeks gestation. What began as a blog to keep friends and family updated on Joseph’s premature birth is now a blog about her family and their life raising a child with multiple special needs as a result of his premature birth. Laura is also an advocate for children and families raising children with special needs.
In addition to her blogging for Graham’s Foundation and her personal blog, Laura has had several articles published for Preemie Babies 101 and Complex Child e-magazine. In 2014, Laura was named one of Converse College’s 125 Outstanding Alumnae in honor of the college’s 125th anniversary.
Laura is the proud wife of Scott, and mom of two – Joseph and Emily. Laura resides in a suburb of Atlanta, Georgia.
Contact
The Morgan Leary Vaughan Fund, Inc.
Stephanie M. Vaughan
203-60-64873
www.morgansfund.org
Stephanie M. Vaughan
203-60-64873
www.morgansfund.org
Contact
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