Pediatric Brain Tumor Foundation Introduces Free Toolkit for Newly Diagnosed Families
Asheville, NC, April 28, 2016 --(PR.com)-- The Pediatric Brain Tumor Foundation is pleased to announce the publication of the Star Portfolio, a new resource for families of children recently diagnosed with a brain tumor.
“Our new Star Portfolio is a toolkit designed to help families of newly diagnosed brain tumor patients partner with their child’s healthcare team and to organize medical information during treatment,” said Melanie Smith, PBTF national director of mission programs. “Children with brain tumors are Stars to the PBTF, so we’ve named this resource the Star Portfolio in their honor.”
The portfolio is a zip-up binder containing basic information on childhood brain tumors and templates and tools families can use to collect and keep track of treatments, medications, patient education materials, information sheets and CDs of scans.
The Star Portfolio was funded in part by Thea’s Star of Hope, a nonprofit started by Pennsylvania mom Trisha Danze when her daughter was diagnosed with a brain tumor.
“When Thea was diagnosed nine years ago, we were lost and confused. We were trying to care for her needs in the midst of a crash course in neuro-oncology,” Danze said. “If we had had a tool like the Star Portfolio to start educating ourselves and organizing her medical information, we could have focused more on her. We’re delighted to help the Pediatric Brain Tumor Foundation make this tool available to other parents so that this time is a little less overwhelming.”
To order the Star Portfolio, please call 800-253-6530, x306 or email familysupport@curethekids.org.
“Our new Star Portfolio is a toolkit designed to help families of newly diagnosed brain tumor patients partner with their child’s healthcare team and to organize medical information during treatment,” said Melanie Smith, PBTF national director of mission programs. “Children with brain tumors are Stars to the PBTF, so we’ve named this resource the Star Portfolio in their honor.”
The portfolio is a zip-up binder containing basic information on childhood brain tumors and templates and tools families can use to collect and keep track of treatments, medications, patient education materials, information sheets and CDs of scans.
The Star Portfolio was funded in part by Thea’s Star of Hope, a nonprofit started by Pennsylvania mom Trisha Danze when her daughter was diagnosed with a brain tumor.
“When Thea was diagnosed nine years ago, we were lost and confused. We were trying to care for her needs in the midst of a crash course in neuro-oncology,” Danze said. “If we had had a tool like the Star Portfolio to start educating ourselves and organizing her medical information, we could have focused more on her. We’re delighted to help the Pediatric Brain Tumor Foundation make this tool available to other parents so that this time is a little less overwhelming.”
To order the Star Portfolio, please call 800-253-6530, x306 or email familysupport@curethekids.org.
Contact
Pediatric Brain Tumor Foundation
Mary O. Ratcliffe
800-253-6530
www.curethekids.org
Mary O. Ratcliffe
800-253-6530
www.curethekids.org
Contact
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