Foundation to Host Its 17th Annual St. Louis Strollathon
Proceeds to benefit the nonprofit's research toward treatments.
St. Louis, MO, August 14, 2024 --(PR.com)-- The International Rett Syndrome Foundation (IRSF) will host its 17th annual St. Louis Strollathon on Sat., Oct. 19 with registration starting at 1 p.m. and the walk beginning at 2 p.m. The one-mile family-friendly stroll, which will be held at the JCC St. Louis located at 2 Millstone Campus Dr., includes a visit from Fredbird, entertainment and food.
The St. Louis Strollathon has raised a total of more than $900,000 since its first event in 2008. The Strollathon is the area’s major fundraising event and brings together families from across the Midwest affected by Rett syndrome. All proceeds will benefit the International Rett Syndrome Foundation.
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls (one in 10,000 births), more rarely in boys, and leads to severe impairments. It is usually recognized in children between six to 18 months as they begin to miss developmental milestones or lose abilities they had gained, including their ability to speak, walk, eat, and even breathe. Rett particularly affects speech, purposeful hand use, and coordination, leaving individuals trapped in their own bodies, understanding more than they can communicate. There is currently no cure for Rett syndrome.
Since 2004, these nationwide family-friendly strolls have raised more than $17 million to advance IRSF’s mission to empower families and accelerate research toward a world without Rett Syndrome.
Donations are appreciated to the Strollathon, which is free and open to the public. For more information, call (314) 346-1323.
The St. Louis Strollathon has raised a total of more than $900,000 since its first event in 2008. The Strollathon is the area’s major fundraising event and brings together families from across the Midwest affected by Rett syndrome. All proceeds will benefit the International Rett Syndrome Foundation.
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls (one in 10,000 births), more rarely in boys, and leads to severe impairments. It is usually recognized in children between six to 18 months as they begin to miss developmental milestones or lose abilities they had gained, including their ability to speak, walk, eat, and even breathe. Rett particularly affects speech, purposeful hand use, and coordination, leaving individuals trapped in their own bodies, understanding more than they can communicate. There is currently no cure for Rett syndrome.
Since 2004, these nationwide family-friendly strolls have raised more than $17 million to advance IRSF’s mission to empower families and accelerate research toward a world without Rett Syndrome.
Donations are appreciated to the Strollathon, which is free and open to the public. For more information, call (314) 346-1323.
Contact
Rett Syndrome Foundation
Rochelle Brandvein
(314) 878-0868
http://www.rettsyndrome.org
Rochelle Brandvein
(314) 878-0868
http://www.rettsyndrome.org
Contact
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