DEBRA Canada

DEBRA Canada Announces, Rare Butterflies Unite This Month to Share Global Awareness

Press release describing the last week of October 2009 as the first International Epidermolysis Bullosa Awareness Week. Sanction by the World Health Organization and the United Nations is sought. This awareness week unites "EB" advocacy groups, charities, and rare disease alliances to promote the development of effective treatments, and research toward finding a cure for EB. - October 25, 2009