Local Voice Experts Gather in Philadelphia to Discuss Rare Neurological Voice Disorder
Over 70 patients and family members will come together at an Educational Conference on Saturday, November 5, 2016, at the Hampton Inn City Center to learn more about the mysterious neurological voice disorder, spasmodic dysphonia.
Philadelphia, PA, November 05, 2016 --(PR.com)-- The National Spasmodic Dysphonia Association (NSDA) is hosting an Education Conference on spasmodic dysphonia on Saturday, November 5, at the Hampton Inn City Center. The Conference will feature physicians, researchers and speech pathologists who are expert in the diagnosis, treatment and etiology of spasmodic dysphonia (SD). SD causes involuntary breaks in speech, making the voice sound strained and shaky in the more common adductor form or breathy, fading away to a whisper in the rarer abductor form. Affecting over 50,000 in the United States, the search for a diagnosis can be a long and frustrating road.
NSDA Board Member and local Support Group Leader Fred Hosier shared, “I've gone to NSDA conferences for several years, and each time I attend I learn something new about our voice condition, not only from doctors and researchers, but also from all the friends I've met who also have SD who share their own stories.”
Spasmodic dysphonia impairs communication and can make it a constant struggle to get sentences out. Local NSDA Support Group Leader Cathie Leister said, "I've heard may people say how isolating SD can be. Well, you are not alone. The NSDA offers many opportunities from support groups, to on-line resources, to national symposiums to provide education and support. These are ways to connect with others with SD and realize that you are not alone."
To learn more about the Educational Conference, please log on to www.dysphonia.org.
About the National Spasmodic Dysphonia Association
Founded in 1989, the National Spasmodic Dysphonia Association (NSDA) is dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia (SD), promoting physician and public awareness of the disorder, and providing support to those affected by SD and their families. It is the only organization dedicated solely to the SD community. Together, we continue to grow through awareness, advocacy, and outreach; help to improve the lives of people dealing with SD; and work to support research in order to bring understanding to this disorder. The NSDA is a tax-exempt 501(c) (3) Organization.
http://www.dysphonia.org.
Contact:
Kimberly Kuman
847-722-4684
kkuman@dysphonia.org
NSDA Board Member and local Support Group Leader Fred Hosier shared, “I've gone to NSDA conferences for several years, and each time I attend I learn something new about our voice condition, not only from doctors and researchers, but also from all the friends I've met who also have SD who share their own stories.”
Spasmodic dysphonia impairs communication and can make it a constant struggle to get sentences out. Local NSDA Support Group Leader Cathie Leister said, "I've heard may people say how isolating SD can be. Well, you are not alone. The NSDA offers many opportunities from support groups, to on-line resources, to national symposiums to provide education and support. These are ways to connect with others with SD and realize that you are not alone."
To learn more about the Educational Conference, please log on to www.dysphonia.org.
About the National Spasmodic Dysphonia Association
Founded in 1989, the National Spasmodic Dysphonia Association (NSDA) is dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia (SD), promoting physician and public awareness of the disorder, and providing support to those affected by SD and their families. It is the only organization dedicated solely to the SD community. Together, we continue to grow through awareness, advocacy, and outreach; help to improve the lives of people dealing with SD; and work to support research in order to bring understanding to this disorder. The NSDA is a tax-exempt 501(c) (3) Organization.
http://www.dysphonia.org.
Contact:
Kimberly Kuman
847-722-4684
kkuman@dysphonia.org
Contact
National Spasmodic Dypshonia Association
Kimberly Kuman
847-722-4684
www.dysphonia.org
Kimberly Kuman
847-722-4684
www.dysphonia.org
Contact
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