National MALS Foundation Established to Provide Hope and Support for Those Suffering with Median Arcuate Ligament Syndrome (MALS)
Median Arcuate Ligament Syndrome is a rare disease that causes chronic abdominal pain in both children and adults. MALS can have significant consequences to the overall well-being of patients; moreover, it can impair a patient's quality of life. The National MALS foundation is a non-profit 501(c)(3) whose vision is to see a future in which MALS patients receive a timely diagnosis and comprehensive supportive medical care.
Albert Lea, MN, February 27, 2019 --(PR.com)-- February 28, 2019 is Rare Disease Day, and The National MALS Foundation is honored to announce that they are dedicated to their mission of providing hope and support (body, mind, and spirit) to those suffering from the debilitating symptoms of MALS through Advocacy, Awareness, Education, and Research within the clinical and mainstream communities. The National MALS Foundation in partnership with the National Organization of Rare Disease has released the following report: rarediseases.org/rare-diseases/median-arcuate-ligament-syndrome/
Medical Advisory Board:
Christopher Skelly, MD, is the Chief of Vascular Surgery and Endovascular Therapy at the University of Chicago Medical Center and is a national expert in minimally invasive surgery for the treatment of Median Arcuate Ligament Syndrome (MALS).
David Dickerson, MD, is the Medical Director of Anesthesia Pain Management Services at NorthShore University Health System in Chicago, Illinois.
Gustavo Oderich, MD, is the Chair, Division of Vascular and Endovascular Surgery, Department of Surgery at the Mayo Clinic in Minnesota.
Board of Trustees:
- Suzanne Keppley-Peek, CMT, President and mother of MALS patient
- Robin M. Schrader, MSW, LCSW-C., Vice President and MALS patient
- Laura Gilmore, Secretary and MALS patient
- Tanya M. Holton, MA, Treasurer, and MALS patient
- Kari Muth-Ulrich, RN, (BSN/Student), Public Relations Coordinator and MALS patient
Website is coming soon
For more information: www.guidestar.org/profile/83-1764075
Medical Advisory Board:
Christopher Skelly, MD, is the Chief of Vascular Surgery and Endovascular Therapy at the University of Chicago Medical Center and is a national expert in minimally invasive surgery for the treatment of Median Arcuate Ligament Syndrome (MALS).
David Dickerson, MD, is the Medical Director of Anesthesia Pain Management Services at NorthShore University Health System in Chicago, Illinois.
Gustavo Oderich, MD, is the Chair, Division of Vascular and Endovascular Surgery, Department of Surgery at the Mayo Clinic in Minnesota.
Board of Trustees:
- Suzanne Keppley-Peek, CMT, President and mother of MALS patient
- Robin M. Schrader, MSW, LCSW-C., Vice President and MALS patient
- Laura Gilmore, Secretary and MALS patient
- Tanya M. Holton, MA, Treasurer, and MALS patient
- Kari Muth-Ulrich, RN, (BSN/Student), Public Relations Coordinator and MALS patient
Website is coming soon
For more information: www.guidestar.org/profile/83-1764075
Contact
National Median Arcuate Ligament Syndrome Foundation
Kari Ulrich, RN
507-402-3858
Kari Ulrich, RN
507-402-3858
Contact
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